Willijean

Thump, thump, thump, Willijean Clemens held the rails while she maneuvered her leg braces one in front of the other so she could get down the stairs without falling.  When they had moved into this six bedroom house after the birth of her last brother, Mom and Dad had offered to fix a bedroom downstairs, but Willijean refused.  “No, she said, I don’t want to sleep alone.  I like sharing with my sisters.  I promise I’ll be careful.”  So, her parents agreed.  They did ask her to have someone watching just in case, which the ten-year-old agreed to do.  And she did for the first few days of living in the large house. 

At three AM, Willijean awakened with a smile as she did each night.  She looked around her.  Mom had insisted that Dad install night lights in her bedroom and in the hallway, so the girl had no trouble seeing even at night.  She heard her younger sister Pat stir in her sleep.  Pat’s bed lay across from the bunk that Willijean shared with her twin sister, Kathy.  A snoring sound akin to a buzz saw came from the top bunk.  Willijean chuckled.  Her sister insisted that “no way, no how”, did she snore at night in spite of the constant complaints of her two roommates.  “I have allergies, so maybe my nose is a little stuffy.  That’s all.”  Her sisters would snort upon hearing that.

Willijean slipped out of bed holding on carefully to the rail on the side of her bottom bunk.  Mom had insisted on this rail in spite of Willijean’s protests.  “Mom, can’t you just let me be normal?  None of the others have to have rails on bottom bunks. “ 

Willijean hated to be treated differently just because she had a disability.  To her, normal meant being independent; not ever needing help.  She always tried to act as “normally” as possible struggling not to appear less capable than the others.  Even so, sometimes she really did need assistance.  “I’m glad they put this rail here,” she admitted to herself.  “It’s hard to get up on my own.”  Willijean struggled to fasten her leg braces which she kept on a chair by the side of her bed.  Then, as quietly as possible, she left the bedroom and descended the stairs. 

Thump, thump, thump!  How she wished she could sneak about soundlessly.  She could never be like the fictional detectives.  Her awkward gait always signaled her presence.  Mom would comfort her, “Honey, you will have many opportunities for success in life.  Please don’t dwell on your limitations.”  But Mom had ten children to look after.    She didn’t have time to fix all the hurts. 

 The anguish that knotted her stomach made Willijean cross with everyone.  Her sisters complained to Mom.  “Make Willijean stop being mean to us,” they whined.  Mom usually let her children settle their differences without interfering.   

“Talk to her when she’s mean.  Tell her how it makes you feel,” was the only interference Mom offered.  The sisters would listen to their mother before hurling insults at their surly sister.

People outside the family tried to be polite to Willijean, but they often stared and whispered while pointing at her.  Did they think she didn’t notice?  Worse than the rude people were those who tried to be helpful out of pity.  “Oh honey, you shouldn’t be doing that.  Here, let me do it for you.” 

Well intentioned people annoyed her no end.  Often Willijean replied with rancor that embarrassed the rest of her family.  “I am quite capable, thank you,” she might say in a curt tone.

Thump, thump, thump.  Willijean reached the bottom of the stairs at last.  She unclasped her hands which had clenched the rails and breathed a sigh of relief.  “Whew!  I made it again without falling!”

A long counter separated the farm style kitchen from the large family dining room.  The space quickly became the center of household activities.   A banquet sized table stood in the middle of this room.  It easily seated the family of twelve.  Dad said when he built the table that if the family grew much larger they might need to invent a bunk table system.  There would be a ladder to get to the top table, and there would be benches attached to the table.  Thinking of this, Willijean snorted.  “Guess who would always have to eat on the bottom?” she thought with just a touch of rancor.  “Well, anyway, we don’t have a bunk table.  Maybe Mom won’t have any more kids.  She’s getting kind of old anyway.  A forty year old woman shouldn’t keep on having kids!”

The table served as the family gathering spot.  The school aged kids did their homework there while Mom worked in the kitchen.  The family always ate breakfast and dinner at the table as well.  The walls of this room absorbed the voices of her family.  Willijean could almost hear them in this room even while they slept upstairs.  In this room the constant chatter of children and adults was omnipresent.

Chests of white drawers lined the walls.  Ten of the drawers had a brightly colored letter painted in the middle.   The letters stood for the ten siblings.  Each had a drawer in which they kept special toys, books, and other personal items that they used in this room.  In the drawers of the baby and the two-year-old brother there were also diapers, wipes and rash cream.

Willijean walked over to the drawer with the “W”, her drawer.  She opened it and smiled when she pulled out a large drawing pad and her drawing pencils.  Then she walked carefully to the table so as not to drop anything.  Thump, thump, thump.  Thank goodness that sound didn’t waken anybody!

One of the chairs at the table had arm rests and rollers.  That chair belonged to Willijean.  With the rollers, she could easily pull herself to the table or push away with her hands.  She used the arm rests to push herself up or ease down.  By pulling the chair against her legs, the child avoided losing her balance.  She placed her drawing materials on the table and began the arduous process of easing herself into the chair holding it tightly so that it didn’t roll away from her and make her fall.  If she fell, Willijean could not get up by herself.  She would have to call for help, something that would surely get her in trouble.  Her face tightened as she imagined the uproar that would follow.   Mom and Dad must never find out about her night time excursions.  Sliding onto the seat using the contracted muscles of her arms made Willijean sweat.  Finally secure in the chair, she pulled herself to the table and took a deep breath.

“Hmm, what should I draw tonight?”  She decided to create an underwater scene with mermaids and fish.  Willijean selected blues, greens, yellows and pinks for the scene she imagined.  She began by drawing a scaly blue fish tail.

Princess Lucia, the mer-king’s daughter used her tail to propel herself through the water.  She loved making loop de loops around her sisters much to their irritation.   The young princess prided herself in being the most agile girl in the entire kingdom. 

The older mer-sisters busied themselves preening and fussing. They prepared for the grand sea ball.  They arranged pearls and shells throughout their long yellow hair and stared into to mirrors to admire the results.  All the important sea folks would be arriving shortly for the social event of the year.  Children were not invited.

Lucia thumped her tail near her older sister’s head causing  her hair to float upward with the small current.  Some of the shells floated out.  “Get away from me, pest!” 

Lucia’s father had told the young princess that she would attend many balls in her two hundred year lifetime, but not this one.  The young mer-children would long be asleep before the ball began.  “That’s not fair!” complained Lucia.  “I want to go!”

That night Lucia, barely able to contain her yawns, snuck into the grand ball room.  From behind the curtain, she heard the musicians playing waltzes on stringed shells as elegant mer-people, decked out in pearls and shells, floated and whirled about the dance floor.  As she watched, Lucia grew sleepy.  The next morning a servant found her behind the curtain and brought her to bed. 

Willijean found her own eyes growing droopy and weary.  “I’d better get back upstairs before I fall asleep.”  Carefully, very carefully she grabbed the side handles of her chair and began the process of pulling herself up.  With her feet finally planted on the floor, Willijean lifted the art supplies from the table and put them away in her drawer.  Then she returned to the stairs to begin the ascent.  She strained her arms to pull her weight upward.  Thump, thump, thump.  That sound was her signature.  Willijean opened the door to her room, sat on the chair and removed her braces.  Then, using her arm muscles once more, she pulled herself into bed and went to sleep.  Inside her head mer- people floated about the dance floor accompanied by the buzz-saw percussion of Kathy’s snores.